Put on your own oxygen mask before helping others around you
In the beginning of Arvids illness, I was trying to figure out what was wrong with him, that also fluctuated so much over weeks, months and sometimes days. But didn't solve totally between, rather got worse. I was then in an analyse and solution state. When months went by and the PD didn't find what Arvid was dealing with and I found out it most likely was PANS/PANDAS and noticed it was so hard getting help with that by ordinary Medical Care, I got really stressed out. I couldn't concentrate to read a book, I lost 6 kg in a month and then I come across some PANS/PANDAS parents information and there it was "Put on your own oxygen mask before helping others around you". Thank you! Since then I try to also not forget about my self. As I read a lot about supplements, vitamins, and minerals to try and find the right supplements for Arvid, I started to take vitamin C, Magnesium, Currcumin, Omega3 and Hemp-oil. Later on I also added NAC, Folate and hydroxy-B12.
Since I started with this I have not taken one IPREN/Ibuprofen for the burning headache. I have also been able to coupe rather good with the high burden of stress that this years has put on me, on us.